Meet Our Ambassadors

These kids are proof of Schreiber’s impact.

Here, every kiddo gets to chase their dreams, defy expectations, and shape their own futures. Every journey is unique, but no child faces it alone.

Please join us in welcoming the 2025 Schreiber Ambassadors

Presented by Culpepper Wood

Meet Gavin

Age 8 / Determined, Empathetic, Tenacious

From the moment Gavin entered the world eight years ago he has met every challenge head on with courage and heart. Born with several rare genetic disorders, including Congenital Myasthenia Syndrome, an FLNA Mutation, Skeletal Dysplasia, and Arthrogryposis, which combined affect every bone in his body, Gavin immediately encountered pain and mobility challenges caused by a severely curved, S-shaped twist in his spine. By the age of three, spinal fusion surgery was necessary to prevent full paralysis. The procedure straightened his spine, relieved pressure on his spinal cord, and gave him the chance to regain function in his legs, but his journey was only beginning.

After surgery, Gavin began attending speech, occupational, and physical therapy at the Schreiber Center multiple times a week. As a Deaf child, he learned American Sign Language and how to use an augmentative and alternative communication (AAC) speech device to communicate his thoughts, feelings, and needs. In occupational therapy, he worked to improve his coordination and fine motor skills, and in physical therapy his goal continues to be to walk, stand, and even run on his own someday. Weekly aquatic therapy at the Schreiber Center is helping him build the strength, flexibility, and coordination he needs to be able to achieve those goals.

Whether in therapy, at school, at home, or out in the world, Gavin’s humor is quick, and he loves making people laugh. When he’s not cracking jokes, he can be found cheering on the Hershey Bears, racing through Mario Kart, and even adaptive skiing with his parents.

Gavin’s personality is magnetic and while his journey hasn’t been easy, his determined spirit inspires everyone who has the privilege of knowing him. With the support of his family and the Schreiber Center, he’s proving that no challenge is too big, and that if anyone can achieve the impossible, it’s him.

2025 Ambassador Gavin
I don’t think it’s possible to overstate the value of Schreiber’s therapists in Gavin’s life. It is not an exaggeration to say that therapy has probably saved his life.

~ Gavin’s dad, Greg

2025 Ambassador Ryley
Schreiber’s formula is magical. We just want to see them grow so more families can experience what we’ve experienced.

~ Ryley’s dad, Jose

Meet Ryley

Age 11 / Resilient, Smart, Brave

Eleven-year-old Ryley June Nazario has a fearless spirit and an unstoppable drive to overcome any challenge. Born with Pfeiffer syndrome, a rare genetic disorder affecting her skull, face, and limbs, Ryley has undergone 40 complex medical procedures, including 28 surgeries. Despite these obstacles, she faces life with resilience, bravery, and an infectious enthusiasm that inspires everyone around her.

Since starting therapy at the Schreiber Center, she has made remarkable progress in her physical abilities, independence, and confidence. With the support of her occupational and physical therapists she’s achieved major milestones including climbing stairs, riding a bike, and even conquering the playground slide. But life is measured in more than milestones, and so is therapy at Schreiber, which is why her therapy plan focuses not only on helping her regain strength after each surgery but also on helping her build the self-assurance she needs to embrace life’s adventures and explore her passions.

Outside of therapy, Ryley enjoys playing Nintendo and Roblox, drawing, singing, dancing, and swimming; activities that once seemed impossible but are now part of her everyday life. Her family credits Schreiber for helping her surpass the expectations of her doctors and for giving her the foundation that allows her to dream big and chase those dreams with confidence.

With each therapy session, Ryley continues to push boundaries, proving that with the right support, she can achieve anything. At Schreiber, she’s not just working toward goals, she’s exceeding them and showing the world just how unstoppable she is.

Meet Sirus

Age 6 / Funny, Loving, Compassionate

Born without any initial signs of health concerns, six-year-old Sirus reached his early milestones alongside his peers. However, at his 9-month check-up, doctors recommended genetic testing, which ultimately confirmed a diagnosis of Spinal Muscular Atrophy (SMA), a rare genetic disorder that affects muscle strength and movement. The diagnosis explained why he struggled with basic physical tasks like rolling over, sitting up, or crawling. Shortly after his first birthday, Sirus received Zolgensma, a groundbreaking gene therapy treatment that gave his muscles a fighting chance and set him on a journey of therapy and adaptations.

For the past three years, Sirus has attended weekly occupational and physical therapy sessions at the Schreiber Center. His therapists carefully tailor each session to his interests, keeping him motivated while focusing on goals like building stamina, improving core strength, mastering the use of his manual wheelchair, and learning everyday skills such as dressing himself and using utensils during meals. Over time, his strength and endurance have improved significantly, enabling him to navigate school independently in his wheelchair and enjoy activities he loves, like fishing with his dad. Today, he feels more in control of his world thanks to the skills he’s gained in therapy.

Outside of therapy, Sirus is a vibrant, adventurous boy with an undeniable love for life. At school, he’s a favorite among classmates and teachers, known for his infectious laughter and natural leadership. While Sirus is so much more than his diagnosis, he has also embraced it as an opportunity to become a role model and advocate for others with physical differences.

Therapy at Schreiber has given Sirus the confidence to make friends on the playground and the physical strength and stamina to keep up with them during play. With the support of his therapists, parents, and teachers, Sirus is proving to the world that he is not just capable but destined for greatness.

2025 Ambassador Sirus
The therapists at Schreiber want to be in the trenches with us as we do day-to-day life with Sirus. That kind of support is invaluable.

~ Sirus’ mom, Dani

Schreiber has been a necessity for us when it comes to being able to care for our daughter and learn about all the things that we need to know so that we’re able to provide the best life for her.

~ Zoey’s dad, Matt

Meet Zoey

Age 10 / Sweet, Smart, Tough

Ten-year-old Zoey Adair proves the potential of a child supported by a community that believes in her. Diagnosed with Rett Syndrome, a rare neurological disorder that affects her motor and communication skills, Zoey faces challenges daily, but with the support of the Schreiber Center, those challenges are met with a plan of action and hope for the future.

Zoey’s journey with Schreiber began before her first birthday. Over the years, she has participated in speech, occupational, and physical therapies, Camp Schreiber, and, in her early years, the Circle of Friends Academy daycare and S.T.A.R.S. Preschool. Fully immersed in the Schreiber community, Zoey has found a second home where she is understood and encouraged to challenge herself.

Speech therapy has given Zoey a voice to share her vibrant personality with the world. Using eye gaze technology, a yes/no board, and partner-assisted scanning, she progressed from telling her parents “I love you” for the first time to reading and writing on her own. While physical therapy has helped her maintain muscle and joint functions necessary sit independently, bear weight, and walk with assistance. Maintaining this functionality is crucial, ensuring that Zoey is ready to embrace even greater breakthroughs as advances in genetic treatments for Rett Syndrome become available.

Outside of Schreiber, Zoey is an active Girl Scout who enjoys participating in activities with her troop. She attends Rett Camp in the summer, goes adaptive skiing with her family in the winter, and lights up every room she enters. With the support of her family, therapists, and teachers, she is reaching her goals and redefining what’s possible.

2025 Schreiber Ambassador Program Sponsor

Thank you to our 2025 Schreiber Ambassador Program Sponsor Culpepper Wood for your commitment to our mission and investing in the future of our children.